Below are list of research surveys currently open for participation. These surveys are run and managed by the researchers detailed below. For any questions and queries regarding the survey, please use the contact details provided.
Psychological predictors of help-seeking behaviour in endometriosis, a quantitative analysis
This a postgraduate student study by Hannah Jeffries at Manchester Metropolitan University and is looking at psychological predictors of help-seeking behaviour in endometriosis.
Message from the researchers: We are interested in exploring how motivations, opportunities and capabilities effect seeking help from communities and professionals, looking at illness perceptions, pain acceptance/catastrophising. There is evidence now suggesting that psychological interventions around chronic illnesses could improve quality of life, however there is no current research exploring pain acceptance and catastrophising on capabilities, opportunities, and motivation help-seeking behaviours. Enhancing our understanding of this will enable us to inform the development of psychological interventions to alleviate some of the suffering and pain experienced by those with endometriosis.
We are interested in exploring how motivations, opportunities and capabilities influence seeking help from communities and professionals, looking at the influence of illness perceptions, pain acceptance and pain catastrophising. Previous research suggests chronic pain perceptions can be altered through psychological treatments which may facilitate changes in help-seeking, improving well-being in the context of endometriosis. This project is being overseen by Dr Jasmine Hearn.
Link to survey: Help-seeking for endometriosis (qualtrics.com)
For any queries please contact Hannah Jeffries - Hannah.jefferies@stu.mmu.ac.uk
Exploring experiences of flares in symptoms in endometriosis associated pain
From the researchers: We are exploring experiences of flares in symptoms in endometriosis associated pain. We are researchers at the University of Oxford who try to better understand endometriosis and chronic pelvic pain. We are looking for people to complete this online survey which takes 10-15 minutes.
Link to survey: Endometriosis-associated pain - experience of 'flares' (jisc.ac.uk)
For any queries, please contact: Lydia Coxon, Post Doctoral Researcher in Pain Data Collection & Analysis
Email - lydia.coxon@wrh.ox.ac.uk
Endometriosis and Adenomyosis Research
This an opportunity to contribute to a new study ran by the University of Liverpool to investigate Treatment Effectiveness and Perceptions for Endometriosis and Adenomyosis (TEPEA). The study aims to understand patient perspectives and experiences to improve patient care in the future. It focuses on the medical and/or surgical treatments that you have received for endometriosis or adenomyosis, or both, and your expectations and experiences of each.
The study asks participants to fill in an online questionnaire that will take roughly 10-15 minutes to complete. If there are any questions you feel uncomfortable answering then you may leave these blank. No personal identifiable data will be collected in this study, as it is completely anonymous!
Study by: Megan Lawrence (Medical Student at the University of Liverpool), Dr Alison Maclean, and Professor Dharani Hapangama.
Please find the link to complete the questionnaire below. There is more information, should you want more detail, provided on the link. We really appreciate you taking the time to participate. Thank you!
For any queries: You are welcome to contact the investigatory team, PRofessor Dharani Hapangama - dharani.hapangama@liverpool.ac.uk or Dr Alison Maclean - amaclean@liverpool.ac.uk with your feedback or concerns.
Find out more and participate at: TEPEA UK: Treatment Effectiveness and Perceptions for Endometriosis & Adenomyosis Study
Personalise vitamin D supplementation in individuals with endometriosis associated pain: A multi-site double-blinded randomised, placebo-controlled clinical trial
From the researchers: We are currently planning this study and would like to ask your opinions on both the topic and the design of the trial. Your answers to these questions will help to ensure our work is as meaningful as possible to people with endometriosis. We are grateful for your time thinking about our study.
Study by: Centre for Human Genetics & Nuffield Department of Women’s and Reproductive Health, University of Oxford
Find out more and participate at: https://nilufer.typeform.com/to/ggakuLcy
For any queries, please contact: Nilufer Rahmioglu, PhD, Senior Research Scientist nilufer.rahmioglu@wrh.ox.ac.uk / endocare@wrh.ox.ac.uk
EXPLORING INFORMATION AND SUPPORT NEEDS OF THOSE WITH ENDOMETRIOSIS
From the researchers: We would be most grateful if you could complete the enclosed questionnaire to help us find your views about your information and support needs on the diagnosis and management of endometriosis.
The questionnaire is simple to complete. It is important to get full information so please answer all the questions even if some may seem repetitive or less relevant.
Study by: University of Aberdeen
Please see below link to survey:
Information and Support needs of those with Endometriosis Survey (surveymonkey.com)
